01709 210151 / 07716 135940 kerry.leeson@alstrom.org.uk
Lights, Camera, Action!

Lights, Camera, Action!

Lights, Camera, Action! Not long to go now until the Rare Film Festival and Awards on the 10th February 2020 at Regent Street Cinema in London. Alstrom Syndrome UK’s animation ‘Living with a Rare Disease’ will be showcased on the night and ASUK are...
Genetics Aware

Genetics Aware

A useful website offering information and advice to families and professionals, following work carried out by The Sheffield University. Their work examined the links between close relative marriage and genetic disorders and they have created a list of key messages to...
Alstrom Syndrome UK

Alstrom Syndrome UK

“Our animation was launched on the 12th May to raise awareness, aid diagnosis and show a positive and enlightening image of the condition and our work. The response we have had, has been fantastic, ‘This animation is a work of brilliance!  So enlightening, helpful,...