BDB were delighted to work in collaboration with Findacure to support them to deliver their workshop. Representing your Community: engaging with ethnic minority communities which took place over three days for rare disease patient organisations.
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We are on the hunt for a Patient and Public Involvement and Engagement (PPIE) Coordinator Thank you for your interest in the PPIE Coordinator role at Alström Syndrome UK and Breaking Down Barriers. This excitingRead more
Background There is currently an under-representation of people from communities from non-European ancestry within bio- and tissue- banks. Many government policy agendas are focussed on the future of healthcare being based around precision medicine andRead more
BDB FREE Event – Let’s Get Together Dates for your diaries: 26th September 2023 – London Registration will be from 9:30 am Start 10:00am Finish 5:00pm Lunch will be provided. This is the firstRead more
Mental Health courses go live! Medics 4 Rare Diseases (M4RD) have launched a new range of online courses called ‘Mental Health and Rare Disease’. The course consists of 8 interactive lessons; each focuses on aRead more
On Tuesday 25th April 2023 the BDB Network came together to hear about the latest developments, how BDB can support you going forward and our plans for 2023, including the chance to all get togetherRead more
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