Let’s Talk Training Tour – stopping off at a virtual location near you!

BDB FREE Event – Let’s Get Together  Dates for your diaries: 26th September 2023 – London Registration will be from 9:30 am Start 10:00am Finish 5:00pm Lunch will be provided.   This is the firstRead more

Mental Health courses go live! Medics 4 Rare Diseases (M4RD) have launched a new range of online courses called ‘Mental Health and Rare Disease’. The course consists of 8 interactive lessons; each focuses on aRead more

On Tuesday 25th April 2023 the BDB Network came together to hear about the latest developments, how BDB can support you going forward and our plans for 2023, including the chance to all get togetherRead more

What is Ramadan   In 2023, Ramadan will begin on the 22nd March 2023 and last for 29/30 days. It is the holiest month of the year for Muslims as it is when the Qur’anRead more

COORDINATING CARE: Learning from the experiences of people living with rare conditions We are delighted that members of the Alström Syndrome UK community were involved in the ‘COORDINATING CARE: Learning from the experiences of peopleRead more