BDB FREE Event – Let’s Get Together Dates for your diaries: 26th September 2023 – London Registration will be from 9:30 am Start 10:00am Finish 5:00pm Lunch will be provided. This is the firstRead more
Mental Health courses go live! Medics 4 Rare Diseases (M4RD) have launched a new range of online courses called ‘Mental Health and Rare Disease’. The course consists of 8 interactive lessons; each focuses on aRead more
On Tuesday 25th April 2023 the BDB Network came together to hear about the latest developments, how BDB can support you going forward and our plans for 2023, including the chance to all get togetherRead more
What is Ramadan In 2023, Ramadan will begin on the 22nd March 2023 and last for 29/30 days. It is the holiest month of the year for Muslims as it is when the Qur’anRead more
COORDINATING CARE: Learning from the experiences of people living with rare conditions We are delighted that members of the Alström Syndrome UK community were involved in the ‘COORDINATING CARE: Learning from the experiences of peopleRead more
At Breaking Down Barriers, we believe that patient organisations and support groups have an important role to play in addressing the challenge of developing appropriate genetic services for the UK’s multi-ethnic population.
Our Office
4 St Kitts Close, Torquay, Devon, TQ2 7GD
Call Us
07716 135940
07970 071675
Email Us
Kerry.leeson@alstrom.org.uk
Catherine.lewis@alstrom.org.uk
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