Rare disease and the lessons learned from the COVID-19 pandemic At the beginning of the Covid-19 pandemic of early 2020, a group of concerned advocates came together to take Action for Rare Disease Empowerment (ARDEnt). The ARDEnt group’s aim was to shed light on the unseen impact of the pandemic on people living withRead more
We are excited to announce the next stage of our project called ‘Let’s Talk Diversity.’ The films have been launched!! Check them out on our campaign page At Breaking Down Barriers (BDB) we are always looking for new ways to develop our knowledge and understanding and explore different perspectives regarding diversity and engagement. Our next stepRead more
BDB were delighted to work in collaboration with Findacure to support them to deliver their workshop. Representing your Community: engaging with ethnic minority communities which took place over three days for rare disease patient organisations. Check our events page to find out more Read more
Breaking Down Barriers Virtual Conference Championing Equality, Diversity and Inclusion 30th June 2021 Click HERE to download the recording and see the slides from the day Come together with like minded professionals who have a passion to ensure no one is left behind. Hear from organisations who are leading the way in engaging with our diverse and multi-culturalRead more
Would you exclude me? This creative and reflective animation takes you on a journey of why the project Breaking Down Barriers (BDB) exists and why this collaborative work is vitally important. Addressing health inequalities is at the centre of what BDB do: finding ways that health services can be shaped to become inclusive and accessible,Read more
Read the latest edition of the Rare Revolution magazine, as contributors share what diversity, equity and inclusion means for them within the context of rare disease. Striving for a community that is both RARE and EQUITABLE. Change doesn’t happen overnight or with one grand gesture, it happens one action and step at a time.Featuring: TheRead more
Are you affected by a rare condition and from a diverse and marginalised community? If so, please come and join us for our virtual event, to help us understand how health inequalities affect you. We warmly welcome people diagnosed with a rare condition, family members, carers, and charity representatives to come along and offer support.Read more
