National Genomic Healthcare Strategy published The Government has launched the new National Genomic Healthcare Strategy – “Genome UK: the future of healthcare” which sets out how the genomics community will come together to harness the latest advances in genetic and genomic science, research, and technology to create the most advanced genomic healthcare system in the world. The Strategy isRead more
The Department of Health and Social Care has published its latest update to its Rare Disease Strategy implementation plan. This is the second iteration of this document, following the previous progress report that was published in February 2019. The document reviews DHSC’s progress on implementing the Strategy and takes a forward look at outstanding actionsRead more
Breaking Down Barriers is a network of patient organisations, support groups and community networks working together to develop supportive and inclusive services for individuals and families affected by genetic conditions. Addressing health inequalities is at the centre of what we do and working at grassroots level, we are identifying ways to improve engagement with peopleRead more
During this Covid-19 pandemic, we are all bombarded with so much news, how do we know what is fact or fiction? It is important that we listen to the facts, so we can make informed choices for ourselves and our loved ones. One area of concern has been about the Covid-19 vaccine, which is nowRead more
The Breaking Down Barriers project is going from strength to strength, now working with over 40 organisations across the UK. We would now like to offer our services to more organisations and individuals, who would like to make a difference and improve the engagement of families from diverse communities. If you are interested, please click HERE toRead more
The small charities coalition have arranged a LGBT session about how our language makes a difference. Tuesday 2nd February 2021 from 15:00 – 16:00 This short session will explore some of the more common terms used in relation to discussions with and about LGBT communities. Speaker: Yassine Senghor Yassine Senghor from Impact Culture. Yassine isRead more
Rare disease and the lessons learned from the COVID-19 pandemic At the beginning of the Covid-19 pandemic of early 2020, a group of concerned advocates came together to take Action for Rare Disease Empowerment (ARDEnt). The ARDEnt group’s aim was to shed light on the unseen impact of the pandemic on people living withRead more
We are excited to announce the next stage of our project called ‘Let’s Talk Diversity.’ The films have been launched!! Check them out on our campaign page At Breaking Down Barriers (BDB) we are always looking for new ways to develop our knowledge and understanding and explore different perspectives regarding diversity and engagement. Our next stepRead more
BDB were delighted to work in collaboration with Findacure to support them to deliver their workshop. Representing your Community: engaging with ethnic minority communities which took place over three days for rare disease patient organisations. Check our events page to find out more Read more
