Blog

I joined Alström Syndrome UK in 2004 when my son was diagnosed with the condition. I am the National Development Manager, responsible for overseeing the Family Support Service and I work closely with our medical teams in Birmingham as we work in partnership to deliver NHS highly specialised multi-disciplinary clinics. I am Project Lead forRead more

I work full-time at Alstrom Syndrome UK who now manage the Breaking Down Barriers project. I support the BDB project in developing their website, communications both internally and externally and coordinating the BDB events. I have worked for Alstrom Syndrome UK in a variety of roles since 2010, but have been part of the AlstromRead more