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This year, the Rare Disease Day reception at Westminster welcomed the rare disease community. People with lived experience, organisations at the heart of this work and policy makers discussed everything rare, the progress made to date and the areas which still need addressing. Rare Disease Day is an annual international event on the last day ofRead more
We have joined forces with the GRACE project which stands for Genetics Research Awareness via Community Engagement. The Grace project is a team of researchers who are passionate about all things genetics related, and their mission is to increase knowledge and understanding of this fascinating field, for all. They match our values as they areRead more
