01709 210151 / 07716 135940 kerry.leeson@alstrom.org.uk
Get on Board!

Get on Board!

Breaking Down Barriers is a network of patient organisations, support groups and community networks working together to develop supportive and inclusive services for individuals and families affected by genetic conditions. Addressing health inequalities is at the...
National Disease Registration Service – Free Webinars

National Disease Registration Service – Free Webinars

This autumn, Public Health England’s National Disease Registration Service (NDRS) is running a series of free webinars, so they can continue to share information about their latest work and developments. Each, lunchtime webinar will focus on a different area of...
National Genomic Test Directory – Consultation

National Genomic Test Directory – Consultation

Don’t miss out on this opportunity to have your views heard. The NHS England and NHS Improvement (NHSE&I) have launched a consultation in relation to the management and updating of the National Genomic Test Directory, which is part of the NHS Genomic...
Join the BDB Network!

Join the BDB Network!

The Breaking Down Barriers project is going from strength to strength, now working with 28 organisations across the UK. We would now like to offer our services to more organisations and individuals, who would like to make a difference and improve the engagement of...
Genome UK: the future of healthcare

Genome UK: the future of healthcare

National Genomic Healthcare Strategy published The Government has launched the new National Genomic Healthcare Strategy – “Genome UK: the future of healthcare”  which sets out how the genomics community will come together to harness the latest...
Patient Insight Series

Patient Insight Series

Check out this fantastic video from one of our members Metabolic Support UK. This video is part of their Patient Insight Breaking Down Barriers Series, which explores the impact that a rare disorder can have on patients and families from the BAME community. In this...