Exciting News – For the Year Ahead!

We are on the hunt for a Patient and Public Involvement and Engagement (PPIE) Coordinator   Thank you for your interest in the PPIE Coordinator role at Alström Syndrome UK and Breaking Down Barriers. This excitingRead more

Background There is currently an under-representation of people from communities from non-European ancestry within bio- and tissue- banks. Many government policy agendas are focussed on the future of healthcare being based around precision medicine andRead more

BDB FREE Event – Let’s Get Together  Dates for your diaries: 26th September 2023 – London Registration will be from 9:30 am Start 10:00am Finish 5:00pm Lunch will be provided.   This is the firstRead more

Mental Health courses go live! Medics 4 Rare Diseases (M4RD) have launched a new range of online courses called ‘Mental Health and Rare Disease’. The course consists of 8 interactive lessons; each focuses on aRead more

What is Ramadan   In 2023, Ramadan will begin on the 22nd March 2023 and last for 29/30 days. It is the holiest month of the year for Muslims as it is when the Qur’anRead more