Name of Organisation: CMT United Kingdom
Address: 3 Groveley Road, Christchurch, Dorset BH23 3HB
Telephone Number: 01202 474203
Email Address: simon@cmt.org.uk
Website: cmt.org.uk
Registered Charity Number: 1112370
Prevalence of Condition (if applicable): 1:2,500
What is Charcot Marie Tooth (CMT)?
Charcot Marie Tooth is a condition that damages the peripheral nerves. It is hereditary. It is progressive, affects people very differently, causes muscles to weaken, chronic pain and fatigue, breathing problems, sleep apnoea, scoliosis, hip dysplasia and vocal cord paralysis
What support is available?
CMT UK provides support through a help-line, regional groups, magazines and newsletter, conferences.
Breaking Down Barriers project overview
Year 1 project to address lack of diversity of membership.