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Rare Disease Care Coordination and Action Plan

By admin user | Latest News | 0 comment | 6 March, 2023 | 0

COORDINATING CARE: Learning from the experiences of people living with rare conditions We are delighted that members of the Alström Syndrome UK community were involved in the ‘COORDINATING CARE: Learning from the experiences of people living with rare conditions‘ report which has been published by Genetic Alliance UK on Rare Disease Day, to highlight theRead more

Rare Disease Day 2023 – Equity for those living with a Rare Condition

By admin user | Latest News | 0 comment | 28 February, 2023 | 0

Happy Rare Disease Day! This day falls on the last day of February and aims to raise awareness and generate change for the 300 million people worldwide living with a rare disease, their families and carers.You can read the Rare Disease Day ‘What is Equity for people living with a Rare Disease’ HERE Watch thisRead more

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Rare Disease Care Coordination and Action Plan

Rare Disease Day 2023 – Equity for those living with a Rare Condition

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