We will be adding more specific conditions, symptoms and support links to this area of the coming months,
Please find below information and website links to further organisations who can give specific advice and guidance regarding some of the specific symptoms.
If you have an immediate health concerns please visit your GP or Consultant in your local area and for all emergencies your first point of call should be your local A&E department or to call 999.
All about the eyes
Some of the organisations below provide further information and advice:
The National Health Service (NHS) provide information about vision loss and organisations which give you information and support.
A UK charity offering support and information for people affected by nystagmus (wobbly eyes).
Are a charity who provide specialist support, accommodation and eye care help for people with learning disabilities, autism and sight loss. They also provide useful eye care fact sheets.
The Royal National Institute for the Blind (RNIB) charity offer a wide range of services and information relating to sight loss, including an online community and help-line.
The Royal Society for Blind Children charity provide a range of services in London and across England and Wales for blind and partially sighted children and young people, their families, and the professionals who work alongside them.
The charity sense offer a wide range of services for those who are affected by both vision and hearing loss. Including information, support, family events and sense colleges and day centres.
Visualise work with organisations to increase awareness of the accessibility challenges faced by employees and/or customers with disabilities. Founder, Daniel Williams, who has an eye condition called Retinitis Pigmentosa which causes gradual sight loss, established the business in 2014 in order to share his knowledge, skills, experience and expertise in this field. Click HERE for the Visualise resource pack designed to help people facing sight loss – it provides lots of useful information about support services and suppliers of assistive technology and equipment.
All about hearing
The charity support people across the UK to manage their deafness, tinnitus and hearing loss. Providing information and community-based care and support services and campaigning for equality. They also offer comprehensive factsheets about cochlear implants and how to get hearing aids and how to adjust them, click HERE to view these.
Are a charity who offer support for children, young people and adults and their families and carers, who are deaf, hard of hearing, visually impaired or have a dual sensory loss. Their services include advocacy, employment and housing advice and specialist equipment advice and mobility training.
All about dual-sensory loss
Offer support for people affected by dual sensory loss, both hearing and sight loss. they offer a comprehensive guide to both hearing and sight loss, getting the benefits you are entitled to and also provide a range of services such as activities and events.
The charity sense offer a wide range of services for those who are affected by both vision and hearing loss. Including information, support, family events and sense colleges and day centres.
All about the heart
Cardiomyopathy UK
Offering information and support for people affected by Cardiomyopathy.
Please note that people with Alström Syndrome are much more likely than average to recover from this condition.
British Heart Foundation (BHF)
Offering advice and support regarding different types of heart conditions, including healthy recipes to try.
All about Diabetes
Offering support and information to people affected by Diabetes including useful resources such as living a healthy lifestyle, recipes and research developments.
All about our wellbeing and mental health
Preparing for Adulthood
Providing resources and information for young people who are affected by disabilities as they move into adulthood. They offer specific expertise and support with paid employment, good health, independent living options and friends, relationships and community inclusion.
The Counselling Directory enables you to find a suitable counsellor, and they are dedicated to making the process as simple as possible, providing individuals in need with all of the information they require to make the most well informed decisions.Counselling Directory aims to be the leading service for providing counselling advice and information – connecting those in distress with the largest support network in the UK. They understand how important it is to find the right counsellor, the one that is exactly suited to your individual situation, have a look on their website for further information of the counselling services available in your local area, as a general rule counsellors with more experience will be accredited with the BACP.
There are many charities who offer support, advice and information to support our mental wellbeing some of these charities are:
Mind offer support and information including useful guides on support and services available, you can view these here.
The charity Young Minds offer support and information for young people experiencing mental health challenges and their parents. They offer guides around support which can be found here as well as a beginner’s guide to the NHS’s Child and Adolescent Mental Health Services (CAMHS) for young people and parents, this guide can be viewed here.
All about Living Well
The NHS has advice and guidance on their ‘Live Well’ website. Follow the link here to find out more.
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