The charity Genetic Alliance UK, has an array of resources for both organisations and individuals diagnosed with a genetic condition and their families.
On their website you’ll find information about the basics of genetics and inheritance of genetic conditions, information about research, different types of genetic testing, genetic services in the UK and reproductive techniques for people at risk of passing on a genetic condition, as well as information for living with a genetic conditions.
They also offer templates for organisations and further support for the rare and genetic community.
Please pop along to their website to find out more https://geneticalliance.org.uk/support-and-information/