Read more
Watch this truly thoughtful video below to see interviews with Clinicians and professionals during the ASUK Conference. Talking about the AS multi-disciplinary clinics, research initiatives and why it is essential to bring everyone together to share information and knowledge to widen our understanding of this ultra rare complex condition, Alstrom Syndrome.Read more
Two Mums, Julie and Pam talk about their own personal journeys of their children being diagnosed with Alström Syndrome and the importance of support. You can watch their truly insightful stories below:Read more
Read more
At Breaking Down Barriers, we believe that patient organisations and support groups have an important role to play in addressing the challenge of developing appropriate genetic services for the UK’s multi-ethnic population.
Our Office
4 St Kitts Close, Torquay, Devon, TQ2 7GD
Call Us
07716 135940
07970 071675
Email Us
Kerry.leeson@alstrom.org.uk
Catherine.lewis@alstrom.org.uk