Welcome to the BDB Community Podcast
We would like this area to be a place where you can come to learn more about the people behind the conditions you hear about, to hear from those who are living with genetic and often rare conditions, and so their voice is heard.
‘My Journey with BBS’
In this first Podcast, Sophie interviews Anneba, who has a rare, genetic condition called Bardet-Biedl Syndrome. Anneba shares her experiences of living with the condition, what good support looks like and how the charity BBS UK has supported her and others.
She lastly, answers the million dollar question… What is the one thing that you wish people understood about living with a rare condition?
