ASUK Trustee, Kez and his Son Hassan give an insightful interview about being diagnosed at 17 years old with one of the rarest conditions in the world, Alström Syndrome.
You can watch this truly insightful video below:
ASUK Trustee, Kez and his Son Hassan give an insightful interview about being diagnosed at 17 years old with one of the rarest conditions in the world, Alström Syndrome.
You can watch this truly insightful video below:
At Breaking Down Barriers, we believe that patient organisations and support groups have an important role to play in addressing the challenge of developing appropriate genetic services for the UK’s multi-ethnic population.
Our Office
4 St Kitts Close, Torquay, Devon, TQ2 7GD
Call Us
07716 135940
07970 071675
Email Us
Kerry.leeson@alstrom.org.uk
Catherine.lewis@alstrom.org.uk