Department of Health and Social Care (DHSC) 10 Year Health Plan
Workshop Consultation
In February 2024, BDB and DHSC worked in partnership to deliver a workshop as part of the government’s consultation on the new 10-Year Health Plan.
The aim of the workshop was to include the voices of people from diverse, marginalised and under-served communities who also have experience of living with rare and genetic conditions.
The consultation focussed on the 3 key shifts within the plan:
- Analogue to Digital
- Hospital to Community
- Treatment to Prevention
The workshop included a diverse group of 10 people with lived experience. 9 people joined the virtual workshop, and 1 person provided written feedback – their comments were shared during the discussion.
Representatives from BDB, DHSC Rare Disease team and the 10-Year Health Plan team joined the workshop. The focus group was chaired by Kerry Leeson-Beevers, CEO of ASUK and BDB and patient representative on England’s Rare Diseases Framework Delivery Group.
Representatives from the DHSC Rare Diseases team thanked everyone for such an honest, open and fruitful discussion. Findings from this workshop will feed into the governments consultation and will amplify the voices of people with lived experience in the 10-Year Health Plan.
ASUK and BDB would like to thank everyone who contributed to the workshop, and all members of the BDB Experts by Experience Advisory Group for sharing their insights and experiences and for their continuous support.
We also give thanks to the DHSC and delivery partners for the efforts being made to address health equity for all people affected by rare conditions. We appreciate the recognition given to the importance of the patient voice, including the voices of people who often go unheard.
You can read the full findings from the workshop in the report HERE
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