01709 210151 / 07716 135940 kerry.leeson@alstrom.org.uk

Conference 2021

Diverse Discoveries and Inclusive Insights Conference


What a day! 

For those who joined us on the 30th June 2021, it was an insightful and informative day.

You can see the full agenda HERE

We heard from organisations who are leading the way in engaging with our diverse and multi-cultural society, exploring the importance of the language and communication we use, learning about the developments in genetics and how health inequalities can have a devastating impact on the lives of families affected by genetic conditions.

One of the most rewarding times is hearing how the conference has been received:

“One of the most important meetings that has happened in the rare sphere this year. Thank you for all the work you do”

“The whole conference was very well thought out. The quality of the speakers and delivery was excellent. The animation at the beginning totally captured what BDB stands for and how they want to work with partners. Very impressive!”


Recording from the day

If you weren’t able to make the sessions, you can find the full recording by clicking on the link below:



Slides from the day


Breaking Down Barriers Slides from the day can be downloaded HERE

What is a 2:4 family?
Sharing findings from our joint MDUK & BDB survey. Identifying support & training needs of Neuromuscular healthcare professionals working within diverse communities.
Bobby Ancil, Head of Health Service Development and Campaigns, Muscular Dystrophy UK
Asya Choudry, BDB Community Engagement Manager

The slides can be downloaded HERE

Knowledge is power
GENEuary & the importance of screening
Nicole Gordon Executive Director

The slides can be downloaded HERE

Sondra Butterworth
Director of Research and Social Impact
Lucy McKay
Chief Executive
Medics 4 Rare Diseases

The slides can be downloaded HERE

Getting to the facts of Pre-Implantation Genetic Diagnosis
Nick Meade
Joint Interim CEO and Director of Policy
Genetic Alliance UK

The slides can be downloaded HERE

Enhancing inclusion of diverse populations in genomics: A competence framework
Dr Saghira Malik Sharif, PhD
Principal Genetic Counsellor Yorkshire Regional Genetic Service
Leeds Teaching Hospitals NHS Trust, Leeds

The slides can be downloaded HERE


A HUGE THAK YOU to everyone who was involved; those who presented, interacted and attended, roll on the next one!!