01709 210151 / 07716 135940 kerry.leeson@alstrom.org.uk

Breaking Down Barriers Workshop 1

The Bridge, Southwark Room, 81 Southwark Bridge Road, London, SE1 0NQ

18th July 2016

Group Discussion Summaries

Session 1: What barriers currently exist?

  • Language
  • Cultural
  • Religious
  • Accessing families
  • Barriers within the medical profession

Session 2: How may the learning from this project and the additional funding benefit your organisation?

  • Offer practical advice about how to engage effectively with families from South Asian communities
  • Share learning about how to overcome barriers and access families / learn from the experiences of others
  • Learn how to identify and access families that are underrepresented within client groups
  • Learn how to engage specifically with adults from South Asian communities – develop an awareness of generational differences/barriers
  • Share examples of good practice
  • Explore ways to ensure our organisations are accessible to families from different communities
  • It is important to share our learning wider within the voluntary sector and beyond

Project Ideas

  • How do we get leaflets out to patients and medical professionals? GP Mailing (Northgate), Medical Conferences, Training (RCGP Module), produce & translate disease specific leaflets
  • Produce leaflets aimed at genetics education for families in a range of languages and pitched at different literacy levels
  • Explore the possibility of using translation tools on website (Note: it is important to check for accuracy!)
  • Offer support to patient groups in other countries
  • Utilise parents with similar experiences
  • Develop and translate resources and improve accessibility, e.g. Medical Passports
  • Offer days out and ask current families to support
  • Advertise and employ staff with specific skills sets, including language to help to promote work with families from South Asian communities. Aim to ensure families feel able and willing to contact the organisation and seek support
  • Use personal experience/case studies to offer open and non-judgemental support
  • Expand our knowledge by speaking to different hospitals and asking what barriers are faced by different communities. Ask them to signpost to our organisations and learn from the information gathered from this work
  • Send information packs to GP’s and ask them to signpost people to our organisations
  • Provide more information about carrier status and what it means to be a carrier
  • Organise community events linked with religious festivals. Use these opportunities to give support and information and to link families together
  • Provide family carer awareness days and offer separate workshops/sessions for males and females. Consult with families and find out what they would like from each organisation
  • Examine the role of Royal College’s in education on diversity
  • Provide genetics education programmes and consider different approaches dependent upon the target audience i.e. young people, adults, parents, medical professionals
  • Use interpreters when carrying out home visits to provide clarity and to be able to answer questions and help improve understanding