01709210151 / 07716135940 kerry.leeson@alstrom.org.uk

Shamshad Hanif

Hi, my name is Shamshad Hanif and I am a parent representative for the Breaking Down Barriers project. I am able to relate to the needs of parents as I have had first-hand experience of living with a genetic condition. My daughter was diagnosed with Sanfillipo Syndrome at the age of three. As a mother, I am able to help other parents to develop their understanding of genetics and at the same time help professionals to understand the impact of a genetic diagnosis. I hope to help them understand how a parent feels, the isolation many families experience and to prepare them for some of the questions they may ask, as I did throughout my own journey with my daughter.