Check out this fantastic video from one of our members Metabolic Support UK.
This video is part of their Patient Insight Breaking Down Barriers Series, which explores the impact that a rare disorder can have on patients and families from the BAME community.
In this video, Mum Sabrina shares her stories and experiences of raising a child with an Inherited Metabolic Disorder within a BAME community.
Thank you Sabrina for sharing your story!
Please get in touch if you would like to know more about the Breaking Down Barriers project, or if you are interested in applying to be involved in this collaborative work, to ensure all families get the access to healthcare services and support that they need.
Please contact Catherine Lewis in the first instance by email firstname.lastname@example.org to express your interest.