01709 210151 / 07716 135940 kerry.leeson@alstrom.org.uk

Breaking Down Barriers is a network of 30 organisations working together to improve the lives of people from marginalised communities including those from BAME backgrounds, so they have equal access to health services. Addressing health inequalities is at the centre of what we do: finding ways that health services can be shaped to become inclusive and accessible, and working with families to encourage and support them to access those services.  The Breaking Down Barriers network of organisations, working at a grass roots level, is sharing good practice and exploring new ideas to help educate, empower, and provide an evidence base to promote equity of access to mainstream health services.

The Covid 19 crisis has now starkly highlighted health inequalities in the UK and these are also one of the focuses of  the Black Lives Matter movement. The Breaking Down Barriers network is well placed and committed to contribute our expertise and support to those who are addressing the same challenges and with whom we share a mission.

Health inequalities are not inevitable and can be significantly reduced… avoidable health inequalities are unfair and putting them right is a matter of social justice.’ 

(The Health Foundation, 2020, (online) https://www.health.org.uk/publications/reports/the-marmot-review-10-years-on, accessed on 10.06.20)

 

 

Further Information

You can click on the link to find Public Health England’s advice for protecting those in vulnerable groups, such as Rare Diseases:
https://www.gov.uk/government/publications/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19

You can find information and advice from Public Health England at https://www.gov.uk/guidance/coronavirus-covid-19-information-for-the-public

You can find out more about the Government’s response on their website www.gov.uk/coronavirus

NHS Guidance can be found by following the link to the NHS website  https://www.nhs.uk/conditions/coronavirus-covid-19/ 

Guidance can be found via this link, in Urdu
https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/874301/Stay_at_home_guidance_for_households_with_possible_coronavirus__COVID-19__Urdu_UR.pdf

An easy-read guide can be downloaded HERE

 

 

Coronavirus Guidance

 

 

This is the advice from NHS England and the links to the latest information.

Everyone is being reminded to follow Public Health England advice to:

 

  • Always carry tissues with you and use them to catch your cough or sneeze. Bin the tissue and wash your hands or use a sanitiser gel.
  • Wash your hands often with soap and water, especially after using public transport.
  • Use a sanitiser gel if soap and water are not available.
  • Avoid touching your eyes, nose and mouth with unwashed hands.
  • Avoid close contact with people who are unwell.

Stay at home to stop coronavirus spreading

Everyone must stay at home to help stop the spread of coronavirus.

This includes people of all ages – even if you do not have any symptoms or other health conditions.

You can only leave your home:

  • to shop for basic essentials – only when you really need to
  • to do one form of exercise a day – such as a run, walk or cycle, alone or with other people you live with
  • for any medical need – for example, to visit a pharmacy or deliver essential supplies to a vulnerable person
  • to travel to and from work – but only where this is absolutely necessary

Developing supportive and inclusive services

for individuals and families

affected by genetic conditions

Listen to Kerry in this short video, about the Breaking Down Barriers project, where it started and the ways organisations are working together to improve access to services for all affected by genetic conditions.

Latest News

Lights, Camera, Action!

Lights, Camera, Action! Not long to go now until the Rare Film Festival and Awards on the 10th February 2020 at Regent Street Cinema in London. Alstrom Syndrome UK's animation 'Living with a Rare Disease' will be showcased on the night and ASUK are delighted and...

Jnetics Screening Day

Asya Choudry, BDB's Community Engagement Manager has joined Jnetics for their screening event at JCoSS, Jewish Community Secondary School. This event is taking place as part of the GENEius programme, a comprehensive education and screening initiative targeting young...

Genetics Aware

A useful website offering information and advice to families and professionals, following work carried out by The Sheffield University. Their work examined the links between close relative marriage and genetic disorders and they have created a list of key messages to...