01709210151 / 07716135940 kerry.leeson@alstrom.org.uk

“Developing supportive and inclusive services for individuals and families affected by genetic conditions”

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Alstrom Syndrome UK

“Our animation was launched on the 12th May to raise awareness, aid diagnosis and show a positive and enlightening image of the condition and our work. The response we have had, has been fantastic, ‘This animation is a work of brilliance!  So enlightening, helpful,...

‘The Big Debate’ on BBC Radio

Ehlers-Danlos UK take part in ‘The Big Debate’ on BBC Radio, Asian Network. Mya Choudry, Health and Helpline Advisor at EDS UK shares information about the condition and their project funded by Breaking Down Barriers to help increase awareness, improve diagnosis and...