01709210151 / 07716135940 kerry.leeson@alstrom.org.uk

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Project Outreach Officer – apply today!

Would you like to contribute to the development of supportive and inclusive services for individuals and families affected by genetic disorders and support patients to have a voice? The aim of the Breaking Down Barriers project is to strengthen the ability of patient...

Genetics Aware

A useful website offering information and advice to families and professionals, following work carried out by The Sheffield University. Their work examined the links between close relative marriage and genetic disorders and they have created a list of key messages to...

Alstrom Syndrome UK

“Our animation was launched on the 12th May to raise awareness, aid diagnosis and show a positive and enlightening image of the condition and our work. The response we have had, has been fantastic, ‘This animation is a work of brilliance!  So enlightening, helpful,...

‘The Big Debate’ on BBC Radio

Ehlers-Danlos UK take part in ‘The Big Debate’ on BBC Radio, Asian Network. Mya Choudry, Health and Helpline Advisor at EDS UK shares information about the condition and their project funded by Breaking Down Barriers to help increase awareness, improve diagnosis and...