“Our animation was launched on the 12th May to raise awareness, aid diagnosis and show a positive and enlightening image of the condition and our work. The response we have had ….

Mya Choudry, Health and Helpline Advisor at EDS UK shares information about the condition and their project funded by Breaking Down Barriers to help increase awareness…

A useful website offering information and advice to families and professionals, following work carried out by The Sheffield University. Their work examined the links between close relative …