Would you like to contribute to the development of supportive and inclusive services for individuals and families affected by genetic disorders and support patients to have a voice? The aim of the Breaking Down Barriers project is to strengthen the ability of patient...

Following the success of year 1 projects, we would now like to extend this opportunity to other patient organisations and support groups who would like to develop their knowledge and understanding to enable them to provide supportive and inclusive services. For...

A useful website offering information and advice to families and professionals, following work carried out by The Sheffield University. Their work examined the links between close relative marriage and genetic disorders and they have created a list of key messages to...