01709210151 / 07716135940 kerry.leeson@alstrom.org.uk

Developing supportive and inclusive services

for individuals and families

affected by genetic conditions

Latest News

Rare Disease Day

On the last day of February every year the rare disease community comes together to raise awareness of rare diseases and their impact. This year is particularly special as Rare Disease Day falls on a leap year so it is even more rare falling on the 29th February 2020....

Lights, Camera, Action!

Lights, Camera, Action! Not long to go now until the Rare Film Festival and Awards on the 10th February 2020 at Regent Street Cinema in London. Alstrom Syndrome UK's animation 'Living with a Rare Disease' will be showcased on the night and ASUK are delighted and...

Jnetics Screening Day

Asya Choudry, BDB's Community Engagement Manager has joined Jnetics for their screening event at JCoSS, Jewish Community Secondary School. This event is taking place as part of the GENEius programme, a comprehensive education and screening initiative targeting young...