Further Information
You can click on the link to find Public Health England’s advice for protecting those in vulnerable groups, such as Rare Diseases:
https://www.gov.uk/government/publications/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19
You can find information and advice from Public Health England at https://www.gov.uk/guidance/coronavirus-covid-19-information-for-the-public
You can find out more about the Government’s response on their website www.gov.uk/coronavirus
NHS Guidance can be found by following the link to the NHS website https://www.nhs.uk/conditions/coronavirus-covid-19/
Guidance can be found via this link, in Urdu
https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/874301/Stay_at_home_guidance_for_households_with_possible_coronavirus__COVID-19__Urdu_UR.pdf
An easy-read guide can be downloaded HERE
Coronavirus Guidance
This is the advice from NHS England and the links to the latest information.
Everyone is being reminded to follow Public Health England advice to:
- Always carry tissues with you and use them to catch your cough or sneeze. Bin the tissue and wash your hands or use a sanitiser gel.
- Wash your hands often with soap and water, especially after using public transport.
- Use a sanitiser gel if soap and water are not available.
- Avoid touching your eyes, nose and mouth with unwashed hands.
- Avoid close contact with people who are unwell.
Stay at home to stop coronavirus spreading
Everyone must stay at home to help stop the spread of coronavirus.
This includes people of all ages – even if you do not have any symptoms or other health conditions.
You can only leave your home:
- to shop for basic essentials – only when you really need to
- to do one form of exercise a day – such as a run, walk or cycle, alone or with other people you live with
- for any medical need – for example, to visit a pharmacy or deliver essential supplies to a vulnerable person
- to travel to and from work – but only where this is absolutely necessary
Developing supportive and inclusive services
for individuals and families
affected by genetic conditions
Listen to Kerry in this short video, about the Breaking Down Barriers project, where it started and the ways organisations are working together to improve access to services for all affected by genetic conditions.
Latest News
Ramadan at home
WHAT IS RAMADAN? In 2020, Ramadan will be from around the 23rd/24th April for 29/30 days. It is the holiest month of the year for Muslims as it is when the Qur’an was revealed to the Prophet Muhammad (PBUH). During the month of Ramadan, Muslims around the world will...
UK Strategy for Rare Diseases 2020
The Department of Health and Social Care has published its latest update to its Rare Disease Strategy implementation plan. This is the second iteration of this document, following the previous progress report that was published in February 2019. The document reviews...
Rare Disease Day
On the last day of February every year the rare disease community comes together to raise awareness of rare diseases and their impact. This year is particularly special as Rare Disease Day falls on a leap year so it is even more rare falling on the 29th February 2020....